Participate in Research
To develop drugs and therapies for PKD, clinical studies must be conducted. Patients play a key role in the research and development process by volunteering to participate in clinical studies. From observational studies to clinical trials, you can help researchers unlock the secrets of PKD and find a treatment by participating in a study.
Clinical Trial FAQ’s
Find out what participating in a clinical trial looks like, how your safety will be protected and why you might want to participate.
Connect to studies
From observational studies to clinical trials, patients can help researchers unlock the secrets of PKD and find a treatment by participating in a study.
ADPKD Registry
The first in the U.S., the secure and patient-powered ADPKD Registry will advance research and help us #endPKD.
PKD Treatment Pipeline
Learn about the treatments for PKD currently being developed in the United States.
PKD Connect
Resources, education, and support from our PKD community, HOPE line and chapters.
Getting a nephrectomy?
Donate your PKD kidney to research and help to advance our understanding of PKD.
