Participate in Research

To develop drugs and therapies for PKD, clinical studies must be conducted. Patients play a key role in the research and development process by volunteering to participate in clinical studies. From observational studies to clinical trials, you can help researchers unlock the secrets of PKD and find a treatment by participating in a study.

Clinical Trial FAQ’s

Find out what participating in a clinical trial looks like, how your safety will be protected and why you might want to participate.

Connect to studies

From observational studies to clinical trials, patients can help researchers unlock the secrets of PKD and find a treatment by participating in a study.

ADPKD Registry

The first in the U.S., the secure and patient-powered ADPKD Registry will advance research and help us #endPKD.

Find a Clinic

Enter your zip code and we’ll show you a list of the clinics and nephrologist’s near you with experience in PKD.

PKD Connect

Resources, education, and support from our PKD community, HOPE line and chapters.

Getting a nephrectomy?

Donate your PKD kidney to research and help to advance our understanding of PKD.

Help discover

PKD treatments

1001 E. 101st Terrace, Suite 220 Kansas City, MO 64131
pkdcure@pkdcure.org
800.PKD.CURE