Novel Imaging in ARPKD

Pennsylvania

Overview

In this study, researchers at the Children’s Hospital of Pennsylvania are developing new ultrasound and magnetic resonance imaging (MRI) methods to measure kidney and liver disease severity in autosomal recessive polycystic kidney disease (ARPKD). Participants in this study will include individuals with ARPKD, and a comparison group of healthy individuals without liver or kidney disease. Individuals of any age may take part in the study. Study procedures include an ultrasound and MRI scan of the abdomen (MRI is only done in participants able to lie still for up to an hour, generally at least 8 years old). Participants with ARPKD will also have a blood test and will be asked to complete 1 follow up visit per year for up to 3 years after baseline.

For more information, click “Learn More” at the top right of the page, or call 215.590.3913

Age Range

All ages
Type of Trial

Observational
Status

Active
Diagnosis

ARPKD
Age

Under 18, 18-65, Over 65
eGFR

Over 90, Less than 30 mL/min/1.73m³, Between 30-60, Between 60-90
Transplant

Have Had Transplant, Have Not Had Transplant
Stage

Recruiting
Dialysis

On Dialysis, Not on Dialysis