ADPedKD

Overview

ADPedKD is a international, longitudinal registry including ADPKD patients followed up from childhood.

This project aims to provide an observational evidence base for unified diagnostic, follow-up and treatment approaches regarding modifiable disease factors such as hypertension in order to slow down disease progression.

After informed consent, patient data is entered into a web-based, secured database. The clinical data collected will be statistically analyzed with the help of an experienced bioinformatician. Special interest is paid to the initial clinical presentation and pre- and perinatal history.

You may qualify if you:

• Are a male or female of any age
• Were diagnosed with ADPKD at the age of 19 or younger