Polycystic Liver Disease Registry

Overview

The Polycystic Liver Disease (PLD) registry (UK) will be part of an international, multicentre, observational registry. All patients with Polycystic Kidney Disease (PKD) with PLD or patients with Isolated (without PKD) Polycystic Liver Disease are eligible for inclusion (>10 liver cysts).

Data will be collected prospectively and retrospectively including a specific validated PLD questionnaire (PLD-Q).

This registry provides us insight in patient characteristics, risk factors, symptoms, quality of life and treatment strategies in the biggest international PLD cohort so far. Results of this registry will be published and shared at national and international congresses.

You may qualify if you:

• Are a male or female 18 years of age or older
• Have a diagnosis of polycystic liver disease with more than 10 liver cysts